We just got checked into the hospital and are waiting to start our first round of the globulin treatments. We have had another long day of doctors and meetings, but everyone here has been amazing.
We started at 8am with a very thorough sonogram and a meeting with Dr. Fox. All of the same issues are there and we also found out that the lungs have not developed well so far. Again we were told that the baby is still very sick, and there is only a small chance that he will survive, with or without the treatments. But they agreed that we should definitely try and are willing to help us in any way possible.
The globulin treatment is a 10-12 hour IV infusion, so I have been admitted into the hospital where they will monitor me overnight.
We will come back to Houston next week for another check up and to monitor how he is doing. We are not sure how often I will need the treatment going forward, but more than likely every few weeks.
We also had a 2 hour echo and met with another heart doctor. The heart is still in distress and there is still a leak in the tricuspid valve, but structurally it looks okay.
There is probably a lot more to add, but it is now time for the treatment and rest. We are going to have an MRI done on the baby's brain tomorrow or next week. He has flipped positions and is now head down and facing down, so they had a hard time seeing certain parts of the brain clearly during the sono today.
We are still in the position of hoping for a miracle and are thankful for the prayers of so many. I was even told that my coworkers gathered together today during our big Sales and Marketing meeting (that I am missing) and said a prayer for me. During times like these, it is so heart warming to know how many people are supporting us!
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